If I had to give you just one descriptive word that encompasses all my emotions during September, it would have to be Fuck with a capital F, yes, perhaps not the most elegant, imaginative, nor a socially acceptable one. Though when saying it aloud or maybe screaming it out in the middle of a field, it expels so much more energetic emotion than any other word I can pronounce.
Those weeks without my ability to be by the Squires side in hospital pushed me to corners of my mind that I never want to frequent ever again. It has been such a roller coaster of emotions, all of which I am still trying to process. I may never write about that experience in-depth as it would mean needing to relive it, and I’m not sure I want to do that.
What I am proud of is that we survived the Squires five weeks in hospital with reasonable sanity on our side and our sense of humour still alive. We also came out the other end with a massive appreciation of how strong we are when pushed to our limits. Of course, we had terrific support via family and friends from all over New Zealand and worldwide who unfortunately could not support us in person due to Covid restrictions.

Last but not least is the fantastic medical team.
The Squire will still require intensive support from Auckland hospital for the next few months and years of ongoing support when returning to Tauranga. His medical team on a daily basis deals with tremendous stress and their expertise they’re able to get an ever-growing number of cancer patients back to some normality. Weirdly, in this complex procedure, they need to take those patients to the brink of death then the journey of restoring them with healthy stem cells. There is, of course, the donors who make all this possible without them; an allogeneic stem cell transplant procedure is not possible.
Another vital person is the caregiver, that’s me. Now that the Squire is in the post-transplant stage of his recovery he needs someone with him as things can change so quickly, primarily due to infections or his body not taking kindly to those vital anti-rejection drugs which we found out within his first week out of hospital. Between this stage and the beginning, I filled a few solitary hours with writing, most never to be seen on a public screen. There’s always an exception to the rule, with one written during those dark filled hours and one that I will share with trepidation.
Your Wife by your Bedside

Across the bed, I see the nurse, and to myself, I smiled.
Some think they know this man as they change his life,
But this man is my husband, and I am this man’s wife.
It was my feet he swept me off with his laid back charm.
I walked to meet him down the garden aisle.
This man has strength and courage, the rock on which I lean,
So many thoughts of days gone by and special times we spent.
It’s true those feet are now confined to a hospital bed, and he is tired.
And as he tries to stay awake, my heart aches.
How could we know there would be a time of little joy and anguish,
A time when we needed to fight the good fight and be stronger than most.
Our love cannot be measured in good times and in bad.
That love cannot be gauged upon the happy times and sad.
The battles fought but this one’s just begun.
I look at him with quiet pride; my eyes are filled with tears,
And then he smiles and out go all my fears.
With him, I’ll fight until the end and be thankful for our new life,
For this man is my husband, and I am this man’s wife.

Shout it out loud and as often as you need to – whatever helps your sanity and well-being, never mind elegant or acceptable!
Loving Husband and I will celebrate our 25th anniversary next month. I will remember your moving words and feelings expressed about yours & The Squire’s couplehood; you both are my heroes.
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You’re too kind, Ju-Lyn. Have a wonderful time celebrating your 25th Anniversary.
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This is such a beautiful, poignant post Suzanne. I’m so pleased to hear that Les is out of hospital and I wish him a great recovery. Sending (double vaxxed, Uber-careful) hugs to you both.
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Thanks very much, Su, and I have been thinking about how your journey is going. Les’s journey will be a long slow one; he has had just one readmission to the hospital, so not doing too badly. One day at a time. Yes, I am a proud double vaxxed person and not even tempted to hit the shopping precincts 😉 We can never have enough hugs and right back at you. Take care xx
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I’m so glad he is doing well. One day at a time, and before you know you’ll be home again and building a great new “normal.”
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You say and scream whatever you damn well please! You have earned it. Best wishes to you both and cheering you on from this side of the ditch! Melx
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Such beautiful words, made all the more special by your love, honesty and anguish. You both have been in our thoughts over the months and it’s good to read, although scary, of what has been going on. Keep writing those thoughts, even if no-one will ever see them, it obviously helps you cope. Tears in my eyes and sending love.
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Thanks very much, Deb for your lovely comment. Writing is a healthy coping mechanism and less expensive than walking. As I’m sure I’ll need new shoes when we get home.
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Your words are beautiful – and those you write in the darkness don’t need to see the light, it’s enough if they help you in some small way. What a ridiculously unimaginably tough time you’ve both had.
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Thanks very much, Jo. Yes, some things are best left unsaid/written. Hopefully on the road to recovery without many more bumps. No overnight hospital stays this week which is a positive thing.
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Hi Suz…thinking of you both. What an awful time. Glad he’s out of hospital x
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Beautiful poem, and I am pleased to hear of Les’s progress and that you are back together where you belong. No shame in using the F word – I find it very cathartic. As you mention, Billy Connolly makes good use of it, and Andy Murray famously used it recently too.
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Thanks for the update and it’s good to hear the Squire is out of the hospital and back in your care. Such a loving, sweet poem. Your heart beats through every line.
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Thanks very much, Eilene and pleased you enjoyed the poem. Yes, it is really good to have Les out of hospital.
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Suzanne, I’m so glad to hear the Squire is doing well and you’ll return home after several tough weeks being apart and for you full of stress and worries. Thank you for sharing your poignant poem with us. Wishing you both all the best.
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Thanks very much for the good wishes, Natalie. Hopefully the future is less stressful. We will certainly be making the most of it when Les becomes stronger to get out and about.
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Thank you for keeping all of us in blogland up to date with the Squire’s progress. I can’t imagine how hard this must be on the both of you but you are strong and committed so I know you’ll get through it. Hugs to both of you.
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Thanks very much, Janis and everyone has been so supportive in our blogland that I felt doing updates were the least I could do. Hugs back to you too.
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Big virtual bear hugs to you and Les, Suzanne. You are both troopers. That beautiful poem touches my heart. Thank you for sharing it with us.
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So glad that Les has left the hospital and all is going well. It must be such a relief to have him by your side again after those weeks of being apart, but I know there will be fear and stress too in watching him in his recovery. One breath at a time. One day at a time. You’ll get there. Together. xx
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Thanks very much, Jude. Yes, there’s still stress and we are trying to focus on one day at a time. We will get there and looking forward to getting home to start living our lives again xx
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There is no place like home and sleeping in your own bed again.
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What a lovely poem celebrating a wonderful relationship which will now move to a different plane as you have both come through something horrendous. I hope life will be kind to you in the future and that the rest of your days will be spent in happy enjoyment and if you have to use the occasional sweary word which would shock your mother, well, so be it. There will be times when you’ll have to use it again and having already done it, believe me (as someone who came from somewhat the same place) it becomes easier! My best to you and the squire.
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Thanks very much, Maris and pleased you enjoyed the poem. Yes, up and onwards with the next stage of Les’s recovery.
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Suzanne, I have been thinking about you both and how diabolical it must be, even at the best of times. It is fantastic progress that you are back together again and have this second chance. Les needs a T-shirt that says “Immunosuppressed. Keep your **** distance.” Thank goodness for the kindness and professionalism of the medical team.
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Tracy, thanks for thinking of us. What an excellent idea regarding the T-Shirt. When we get home all visitors will have to be double vaccinated.
His medical team got Les out of some nasty situations that could’ve gone pear shaped. Upwards and onwards.
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Hopefully Les will be outpacing you soon on your daily walks. 😊
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He wishes 🙂
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Oh Suzanne, sending you sooo many hugs from Colorado. I cannot imagine what those 5 weeks were like. I agree, sometimes you don’t want to relive the darkness. Happy to hear you all will be back together for some good healing.
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Thanks very much, Pam and for those Colorado hugs. On the long healing journey to rebuilding Les.
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❤️❤️❤️
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What a challenging few weeks you’ve both had, and it’s awful that you had to be apart just at a time when you most wanted and needed to be together. I’m glad you’re both out the other side of that and your husband can leave hospital and be with you again. Good to know he’s making real progress!
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Thanks very much, Sarah. Yes, it was such a relief to have Les out of hospital and to start the next stage of his journey. We’re looking forward to getting back home in Tauranga.
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Suzanne, I saw a meme the other day that said, ‘today I need a word stronger than Fuck!’ I haven’t thought of one yet, and just repeat that one in rapid succession when I need it. It is a very cathartic word.
I love your heartfelt poem. The bond you share with your husband comes through sweetly. Wishing you both the very best during this trying ordeal. Thanks for the update.
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Thanks very much, Suzanne and lovely to read your comment. One comedian that uses the F word so well is Billy Connelly. It’s hilarious.
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How lovely to see Les with a smile on his face and ready to leave the hospital. What a relief for you. I hope the next stage goes well and you can both go home soon.
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Thanks very much, April. The nurse said Les was so cute all dressed and packed up by 7.30am though he was back on the bed sleeping before we left the ward. Unfortunately it’s a busy ward. We are so looking forward to going home and enjoying beach walks together. At the moment Les’s energy isn’t quite up to that.
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Yay! So good to see Les ready to leave. I suppose you still have to stay within reach of the hospital and can’t leave anyway due to the covid level. At least you’re together now… just keep smiling and remember to breath . Hold onto the love xx
Sent from Mail for Windows
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Hi Chris
Les needs regular twice weekly visits with his medical team for two months. Then we can head home. Though will be returning to Ak for checkups.
I’m an expert at breathing exercises🙂 Les is doing well so far, xx
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It has been a long five weeks, sad and lonely and worrying for you, and so much to endure for your dear husband.
Now you have each other again to enjoy and appreciate.
Warm wishes to you both for the journey ahead. 🙂
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Thanks very much, Sue and yes we’re hoping the next few months will be easier and less eventful. We’re so looking forward to going home (Tauranga) and getting on with our lives.
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Poetry, written from the heart is on another level to most attempts and yours for all those sad yet uplifting reasons is perfectly pitched. In the same way as with such a long relationship we can see the results but never grasp those tiny contrarian moments that go to make up the whole, so it is that understanding what leads to that outpouring of emotion is impossible yet we understand why it is essential. Best for the next stage which we all hope adds new layers with those little fragments of joy, annoyance, laughter and heart ache that go to make up relationships. Here’s to the next update when you can add a YES to your emotive F…!
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Thanks very much for your lovely comment which we both appreciated. Absolutely to Yes being attached to the emotive F in the months to come. Next post, I will do something light on emotion, though tough on the feet and write about spending time wandering up and around a mountain.
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Sending much love and healing vibes to you both 💚
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Thanks very much, Cathy. Much appreciated x
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I’m so pleased you both came through. May the relief that that Fuck must have brought bring you strength for the next stage. Your poem is a marvellously loving one.
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Thanks very much, Derrick and that one word did serve to expel more than one bad moment.
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I can’t believe you came out with that terrible F word!
Sent from my iPad
>
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Hahaha, only a Aunty would be mortified by me writing the F Word 😘
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I seem to have missed the last post, Suzanne, and reading it today I moved swiftly on for an update. To hell and back seems to sum it up, hon, but you’ve made it. Long may your love for each other nurture and support you. So wonderful to see that smile! Good luck to you, sir!
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Thanks very much, Jo and you’re right about being to hell and back. Puts other life into perspective. I’ve noticed WordPress has updated how we use our blogs since I last used it. I appreciate the time you give me and my blog 😘 The Sir says thanks.
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A very poignant post, Suzanne. I held my breath as I read your intimate, loving, touching, and well-written poem. Wishing you only ups from now on and that new life together!
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Thanks very much, Liesbet. Yes, it is up and onwards and Les is doing very well so far. We are taking each day as it comes.
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That’s the only way to do it! Still for us… Once something as dramatic and drastic as this happens, you appreciate each new day, while the consequences of the disease are ever-present. Sending you both strength and hugs.
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Yes, once anyone has been on a cancer journey, it never entirely leaves you. Hoping that you both keep on that healthy track x
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Best wishes to your husband and to you. Neil S.
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Cheers Neil, he has come a long way in just a few weeks, still a long journey ahead to repair his body after the transplant.
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This post is so beautifully written and moved me to tears, Suzanne. Sending my love and prayers to the Squire and you.
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Thanks very much, Donna and the next post will be a cheerful walking one 🙂 xx
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